This week is about the tertiary pain of a second-order derivative disease.
On a color wheel of agony, its sort of like mixing an orange flash of self-loating with the "red with shame" hue of embarrassment over feeling like we sometimes do.
And yet it is of primary importance that we realize that "we didn't do this to ourselves."
This rightfully belongs in the Feed Forward segment.
I am starting to expand msbpodcast.com into an actual web radio station.
Starting in January 2010, msbpodcast will have an interactive component which will be called MS Web Radio [ http;//www.MSWebRadio.com ]
Right now its not operative and its only a repeater to bring people to the msbpodcast.com site but I'm going to retool the web site to handle the web radio component.
It will also be podcast so if you don't get to it, it will still be available after the airing.
MS Web Radio will be held for a half an hour every Sunday afternoon at 3PM (15:00) my time.
I will be taking my definitely, uh, unusual show and opening it up to everybody.
I'll keep you posted on my progress as it happens.
I now have THREE sponsors. Success breeds success.
It you're listening on this podcast through iTunes or through a web browser, just click on the image for the sponsor and I'll take you right to the appropriate web page.
If you're on an iPhone or an iPod touch, you should be good to go too.
I'm a big T-Shirt wearer since losing my job and giving up the monkey suits.
I'm wearing one of the many shirts right now. The one that says: "Guitarded". I've even got a compliment on it on the boulevard around the corner from my apartment.
The third sponsor is someone by the name of Rudy Sims who has a web site for people who are disabled in some way or other to exchange their information and other resources. [ http://www.disabilityresourceexchange.com/ ]
Join him in making friends among the disabled community and in sharing the resources and information we all need to live better.
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I'm angling after a fourth sponsor.
That's all I'm going to say for now.
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Well except for this...
I woiked like a dawg all last week.
Whew...
But...
My Book is out!
My book is out!
Oh my gawd, my book is OUT!
Its got:
• a frontispiece
• a Dedication.
• a Table of Contents
• Some History,
• Some Biography,
• Some Technology,
• Some Evolution,
• Some Episodes, (40 choice ones,)
• Some Parting Thoughts,
• URLs & references, a list of
• Books and one heck of an
• Index
Its awesome.
It comes as a
• 240 pages, 6" x 9", jacket-hardcover binding, cream interior paper (50# weight), black and white interior ink, white exterior paper (100# weight), full-color exterior ink, (ISBN 978-0-557-09127-0 )
or as a
• 274 pages, 4.25" x 6.88", perfect binding, white interior paper (60# weight), black and white interior ink, white exterior paper (100# weight), full-color exterior ink, ISBN 978-0-557-09052-5)
Its even got nice covers, pictures, a blurb on the jacket and I'm getting some people to write little reviews and things.
If you'd like to support me in my various nefarious endeavors you'll head to Lulu.com and purchase a copy of "Episodes: The story of an MSer and of MSB's Podcast".
If the page is a bit slow to load, wait, its worth it. :-)
If the page only shows one book, try reloading the page and wait some more.
The hardcover is beautiful but it IS a bit expensive for a single copy; they're cheaper if you buy lots of them; its eBook is $6.25.
The paperback is a pocketable version and better looking than most but it IS still a bit expensive for a single copy; they're cheaper if you buy lots of them; its eBook is $6.25.
The trade price, which Amazon would pay for ordering large quantities, goes down to about half of that but I'm practically eating my own shorts at that kind of ROI.
I need the money to live. Have some pity folks.
Buy which ever you want. (But wouldn't you have a nice hard cover? [Or, are you sure I couldn't talk you into a paperback edition? {I absolutely "need" the dough... :-}])
"Tertiary pain, the social, vocational and psychological complications brought on by primary and secondary symptoms, can be as painful, albeit it in a different way, as any pain associated with MS.
Those described here, and others like them, are life changing, sometimes devastatingly so, and rarely in a positive light.
MS steals our function, and it also steals our self-confidence, scrambles our social lives, and reduces or eliminates our independence."
If fact, that doesn't apply just to MS, but to all disabilities.
Part of the tertiary pain that arises comes out of the ignorance is fostered by the US "health-don't-care" system.
The nose to the grind stone, shoulder to the wheel, fence-straddling rugged individualism of the "Horatio Algier" mythic hero was total bunk then, and its even more bunk now.
The only ones that like it are the same people, or the same kind of people, who preferred pinning their own customers like bugs on a steering wheel column as the result of a low speed crash rather than spend the three hundred dollars on collapsible steering columns, because they wouldn't pay for it, so that must mean that nobody else would pay for it either.
WRONG!
There is a kind of person who looks at everything through actuarial eyes.
Everything is on a profit and loss spreadsheet with these people or it doesn't exist.
They will go to their graves convinced that their own myopia must be the limit of everything.
These accountants of the soul would condemn their own mothers to a slow and painful death before they would consider helping their fellow man, because don't have an entry for being a decent human being on their spreadsheets.
I would laugh in their pathetic faces if it wasn't so tragic.
These people suffer from seriously withered souls.
They are deficient in the first and most human characteristic of empathy.
They can look at tragedy and never be affected by it.
These people represent the worst of humanity.
They can justify anything in support of their own cause and never even see what damage their unthinking, unfeeling behavior is having on their own society.
That's called being sociopaths.
Well turn about is fair play.
They just don't care about us as we suffer so we don't have to feel bad about their having to find another way to ply their trades.
Single payer health care is the "only" way to go and its been proven in every single civilized country, every single time its been applied.
No first or second world country has a health care system in such shameful disarray.
The US literally has a third world health care system and in Washington DC the infant mortality is looking "up" to that of bloody Haiti, for god's sake.
Tertiary pain looks like its going to stay unless and until we get rid of the block heads who clutter our horizon because people in the 'States are schizophrenic and self-delusional.
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