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msb-0277 The Carnival of MS Bloggers

Page history last edited by Charles-A. Rovira 15 years, 9 months ago

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msb-0277 The Carnival of MS Bloggers

Direct Link to episode -> http://media.libsyn.com/media/msb/msb-0277_The_Carnival_of_MS_Bloggers.m4a

Multiple Sclerosis Innovative Research

. .

Intro

Disclaimer! Disclaimer! Disclaimer!

Survey

FeedBack comes first, so...

Herrad may be coming back to the podcast. "Yea!" She's had quite a struggle with her MS lately (and an even worse one with her idiot of a neurologist.)

----

My stats are looking great. I'm showing month over month growth. I'm reaching more and more of us.

The new stats package is great.

AJAX performance is truly impressive.

----

I'm about to install MediaWiki on a server that I have access to this week-end.

Why do you care?

Because it not just for me.

Wist me luck because if this works, we'll have a place that will be accessible to any and all MSers on the planet to get all kinds of MS Chapter News and events, calendars, with Google maps, and any YouTube videos of the events.

Information about events will be set up using a simple and easy to use form so that anyone will be able to describe their event (with pictures if any, with a Google map to the event, with YouTube videos of the event, if any) for a given language, country, zip/postal code, as of a given date. and it will be accessible by location, by event, by event type, by chapter (basically, whatever we've provided.)

It will be updateable by anyone who sends me their chapter info. (There will be a form on the wiki to fill out for update access. Nothing too onerous but it'll keep the "viagara" and "replica Rolex" pushing spammers "off" of the site.)

I'm going to be using beta testers to see how detailed I need to make the update instructions.

----

I admire thoroughness, like the thoroughness of the linking together of the research scientists in the YouTube video attached to the front of this episode's blog entry, and the linking at "The Carnival of MS Bloggers" is certainly that.

That is a list of MS Bloggers as thorough as any I've ever seen in all my years.

Lisa either has way to much time on her hands or she must have some means of organizing them all and the links from one to the next.

Like "Wow!"

What do you think got me off of my butt to create the MSers wiki? :-)

---- "carnival" by: "henning ohlenbusch" http://rockumentary.net/

FeedForward

---- "The Carnival" by: "Jennifer Avalon" http://www.jenniferavalon.net/

FeedMe

---- "a funeral will follow the carnival" by: "the pet ghost project" http://www.myspace.com/thepetghostproject

Thesis:

I could sing peons to/for/about "The Carnival Of MS Bloggers". [ http://carnivalofmsbloggers.blogspot.com/ ]

Lisa has managed to list a whole buch of Bloggers (182 of them as of 2008/03/15) but that is only a very small portion of the MSers one there (I've had hits from all over the planet and from a whole lot more than 182 bloggers [heck, its had hits from almost that many countries] because, as exhaustive as her list is, its limited to those who are rich enough to afford the technology, and bold enough to write and to speak.)

---- "Carnival" by: "Jerry Criner aka Cryout" http://unemploymentrecords.tripod.com/

Synthesis:

Though Lisa's List is admirable (frankly, I'm a little awestruck,) it does not represent us in any way shape or form.

The ratio of 182 blogggers to the estimated 5,000,000 MSer (themselves a 1 in 1,200 ratio of the estimated 6,000,000,000 people on this planet) works out to 27,473 people who have MS for every one of those who blog about their having MS. (About 23 times fewer than even have MS in the general population...)

Okay, we know we computer literate are a scarce commodity, but there are about 50 million iPods out there world wide still in use. (We've probably all bought more than one since they first came out. [I own three of different vintages and different capacities and my wife owns one too.])

That means that there in a shi... uh, a whole bunch of MSers who can benefit from having a podcast (If we apply the 1 in 1,200 guesstimate of the MS society, that works out to over 40,000 MSers from the general iPod using population. [Since the majority of people {5.9 to 1} aren't even using an iPod to get these show episodes, the 40,000 is quite likely to be an underestimate and gives an overall population size of 236,000. {Which means that I still haven't reached but 1 out of 20 or the merest 5% of them.}])

This show is aimed at "them", the rest of us.

---- "Carnival Days" by: "Phil Ayoub" http://philayoub.com/

Conclusion:

The 182 bloggers is a start, but there are over "five million" of us MSers on this planet.

Most of those five million will never even talk to anyone about having MS, never blog, (many of them don't even know about blogs, [they don't have the chance {and it is "chance", and don't you forget it,}]) certainly never podcast, though perhaps, they might not fear a microphone as much as a keyboard, (at least until they discover how "different" they sound. "That" is truly shocking. :-)

Let's get ourselves used to hearing about us and from us...

"That" is the aim of this podcast.

---- "Carnival Funhouse" by: "Seve vs. Evan" http://myspace.com/sevevsevan

Oh, for all of you people who hear me on the web without having iTunes, or maybe you've got rid an an old episode and would like to hear a song again, you can send me an email about it and I'll gladly, gladly play a song again.

Heck I might even feature all of the music from an old show all over again. (I keep everything so if you've it played once, you can hear it played again.)

----

Theme and 'incidental music' from:

"msb_theme",

by: "Guy David",

http://www.guydavid.com/

no album,

via personal contract

Song list

"carnival"

by: "henning ohlenbusch"

http://rockumentary.net/

album: "none